Comments on: Is STS Treatment a Viable Treatment for Duchenne?

By: Misty

Misty — Fri, 04 May 2012 23:04:24 +0000

Hey message me on facebook so I know which Debbie you are THANKS !

By: Misty

Misty — Fri, 04 May 2012 23:02:07 +0000

I forgot it was a private group, I’ll try to get you on..

By: Debbie Schneider

Debbie Schneider — Tue, 01 May 2012 09:45:18 +0000

Hi Misty thanks for that. Tried Facebook page and could not access, is there any other way I can gain access to this facebook page? Have also emailed Dr Rhodes yet again. As huge investment for us with air fares for whole family and flights etc all the way from New Zealand, not to mention cost of treatment and machine, we need to research this really well before such a huge commitment made. How is Luke doing on the treatment, haven’t heard much from you about it for some time. No doubt you are busy with your book launch. Would still be good to hear if treatment working or not since you are my only source of information on this so far. Kind regards Debbie

By: Misty

Misty — Tue, 24 Apr 2012 21:44:02 +0000

Keep trying ;D or go here for more info…. http://vecttor.com/

By: Misty

Misty — Tue, 24 Apr 2012 21:39:55 +0000

Here is Dr. Rhodes website http://vecttor.com/

By: Misty

Misty — Tue, 24 Apr 2012 21:36:46 +0000

Hi there Debbie, so sorry to not get back to you sooner. I’ve been in the middle of launching my latest book Saving Our Sons and Daughters II. Yes you have to go to Texas to get trained on using the VECTTOR machine you purchase. Keep emailing dr Rhodes or join the facebook group http://www.facebook.com/groups/VECTTORdmd/ for more information.

By: Debbie Schneider

Debbie Schneider — Tue, 17 Apr 2012 08:53:24 +0000

Hi Misty, have also emailed Texas Institute of Medicine and have not heard anything. Are hoping for some information from either you or them soon. Thanks and kind regards
Debbie downunder

By: Debbie Schneider

Debbie Schneider — Thu, 05 Apr 2012 05:45:06 +0000

Hi, we live in New Zealand and are very interested in this treatment for our son. How often did Luke have treatment? and you mentioned a cost of $6500US. Do you know if you have to go to Texas for this or can we/or a group of us purchase a machine? I have tried your above link but it goes nowhere. Have found the website but not much information apart from a couple of videos and Dr Rhodes CV. They excited us so much, together with your comments with how you say Luke is doing. Have emailed them and waiting with antici – pation. Thanks so much Misty for your continual inspiration and excellent information. I look forward to reading your book at some stage. Kind regards Debbie Schneider

By: Zoeann

Zoeann — Fri, 23 Dec 2011 01:10:21 +0000

Hi, i’m from the UK, could you possibly tell me how I may get in touch with Dr Rhodes myself? As I can’t seem to find the details on the web.
Fantastic news on your son, this is the first time I have been on your site, very positive for you and your family.

By: Misty

Misty — Tue, 01 Nov 2011 16:50:44 +0000

I can only speak English…SORRY :/

By: paola

paola — Sun, 30 Oct 2011 03:52:25 +0000

hola soy mama de thiago.Somos de argentina, de chubut Comodoro Rivadavia el tiene cuatro años y le diagnosticaron duchenne hace mas o menos un mes.Yo estoy buscando un tratamiento que le ayude y no quiero darle corticoides.por eso necesito saber en que consiste este tratamiento.Si pudieran responderme se los agradeceria mucho.saludos

By: arman

arman — Sun, 05 Jun 2011 15:51:41 +0000

please let us know how the treatment goes

By: Misty

Misty — Fri, 18 Mar 2011 23:15:09 +0000

Yes, the STS is now called VECTTOR…my son has been on the treatments for 10 months now, breathing has improved, over all strength and vitality. My son is doing very well.

By: betsy

betsy — Mon, 28 Feb 2011 15:09:45 +0000

can you tell me if the STS treatment worked?
bets

By: WP Themes

WP Themes — Sat, 10 Jul 2010 17:34:34 +0000

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