Is STS Treatment a Viable Treatment for Duchenne?
By Misty on May 3, 2010 in STS Treatment
I found out about Dr. Donald Rhodes and his STS treatment machines back in November at the same time I was writing my book “In Your Face” Duchenne Muscular Dystrophy All Pain All GLORY. Although skeptical I decided to call Dr. Rhodes. I had no idea he himself would be calling me back. I was sure that his nurse or secretary would be calling me. Based on my conversation with him I also reached out to a few leaders in the Duchenne Community, one of which told me the treatment wasn’t viable and the other was holding out until they could talk to Dr. Rhodes themselves.
After my talk with Dr. Rhodes about how the treatment works for Duchenne patients. I called my family immediately, my gut is telling me Luke has to try this STS Treatment especially now that we know about it and knowing it wouldn’t harm Luke in anyway. It isn’t a shot/injection, or anything chemical like a pill or even chemotherapy, the treatment works on cellular circulation through the energy path ways of the body. In my mind a perfect treatment. But since our insurance won’t cover this innovative treatment which has already helped other Duchenne boys I knew I would have to fund-raise to get my Luke the treatment. That is when my family stepped in, they have put together a Raffle, Benefit Dinner & Silent Auction!
Here is a video of a Raffle Booth at the Women Show from April 23, 24, 25 2010, indoor football team the “Predators” did a push-up contest, losers had to buy raffle tickets. It was such fun! I am completely honored and humbled beyond measure. I am overflowing with energy and emotion, especially after one young boy gave his allowance to help Luke. I am BLOWN AWAY by all the support that is coming in daily! Incredible time we are in! Enjoy the video!
please let us know how the treatment goes!!
You Bet
Misty, my 13 yr old son has DMD and is now in a wheelchair. Since diagnosis 7 yrs ago I have researched for cures daily, watching all of the hopeful therapies, test trials and breakthough’s. I have always had my eye on STS and while I am skeptical, I just know that it will play an important part in the cure. Please keep my email in your distribution list and let me know when you go and what the outcome is.
Hi Chelsea, we leave June 8th. We feel since the treatment won’t hurt Luke and we know about it. That we MUST at least give it a try. It is better than just merely keep on keeping on. It is helping us make hope bigger!
Nice fill someone in on and this mail helped me alot in my college assignement. Gratefulness you for your information.
can you tell me if the STS treatment worked?
bets
Yes, the STS is now called VECTTOR…my son has been on the treatments for 10 months now, breathing has improved, over all strength and vitality. My son is doing very well.
please let us know how the treatment goes
hola soy mama de thiago.Somos de argentina, de chubut Comodoro Rivadavia el tiene cuatro años y le diagnosticaron duchenne hace mas o menos un mes.Yo estoy buscando un tratamiento que le ayude y no quiero darle corticoides.por eso necesito saber en que consiste este tratamiento.Si pudieran responderme se los agradeceria mucho.saludos
I can only speak English…SORRY :/
Hi, i’m from the UK, could you possibly tell me how I may get in touch with Dr Rhodes myself? As I can’t seem to find the details on the web.
Fantastic news on your son, this is the first time I have been on your site, very positive for you and your family.
Hi, we live in New Zealand and are very interested in this treatment for our son. How often did Luke have treatment? and you mentioned a cost of $6500US. Do you know if you have to go to Texas for this or can we/or a group of us purchase a machine? I have tried your above link but it goes nowhere. Have found the website but not much information apart from a couple of videos and Dr Rhodes CV. They excited us so much, together with your comments with how you say Luke is doing. Have emailed them and waiting with antici – pation. Thanks so much Misty for your continual inspiration and excellent information. I look forward to reading your book at some stage. Kind regards Debbie Schneider
Hi Misty, have also emailed Texas Institute of Medicine and have not heard anything. Are hoping for some information from either you or them soon. Thanks and kind regards
Debbie downunder
Hi there Debbie, so sorry to not get back to you sooner. I’ve been in the middle of launching my latest book Saving Our Sons and Daughters II. Yes you have to go to Texas to get trained on using the VECTTOR machine you purchase. Keep emailing dr Rhodes or join the facebook group http://www.facebook.com/groups/VECTTORdmd/ for more information.
Here is Dr. Rhodes website
http://vecttor.com/
Keep trying ;D or go here for more info…. http://vecttor.com/
Hi Misty thanks for that. Tried Facebook page and could not access, is there any other way I can gain access to this facebook page? Have also emailed Dr Rhodes yet again. As huge investment for us with air fares for whole family and flights etc all the way from New Zealand, not to mention cost of treatment and machine, we need to research this really well before such a huge commitment made. How is Luke doing on the treatment, haven’t heard much from you about it for some time. No doubt you are busy with your book launch. Would still be good to hear if treatment working or not since you are my only source of information on this so far. Kind regards Debbie
I forgot it was a private group, I’ll try to get you on..
Hey message me on facebook so I know which Debbie you are
THANKS !