2 Books, One Mission ===>Inspire the Duchenne Movement
 |
In Your Face Duchenne….! NEWLY REVISED AND UPDATED….Duchenne Muscular Dystrophy wasn’t going to stop this mom from living the best life possible. Misty shares openly the roller- coaster of Duchenne in this heart touching, surprisingly laugh proking book In Your Face Duchenne Muscular Dystrophy All Pain All Glory!A book she has written in celebration and preserving her son’s essence while he still graces her life with his presence. A gift to present to him for his mile stone of high school graduation and more importantly staring death “in the face” with triumph and success.“I look at  my son’s Duchenne as a “Sacred Journey” that we are taking together that hardly any other parent gets to take with their child. It is the highest honor!” ~Misty VanderWeele“In Your Face… Duchenne Muscular Dystrophy: All Pain All Glory” is a non-clichéd account of a mother’s tale of endless love for her son, and battle to give him a normal life. With much support from her family and friends, nothing could get in the way, not even DMD” ~Ricky Tsang |
| “Beacon of light to others who face the same challenges” Patti B.PREFACE BY: CureDuchenne | Paper Back17.95
|
 |
Saving Our Sons One Story At a Time, First Duchenne-Parent Collaboration book of its kind. Where parents come together to share their personal stories as a way to shout out the SOS call to the WORLD, that A CURE MUST BE FOUND!
“It has been difficult, but amazing to read (many tears). Many folks said what I wish I had said, which is great, so that we didn’t miss anything together. This book is going to be great in educating the public. I hope many of us can donate 1 to the library, etc. so that more people get the opportunity to read it. Doctors need to read it too, especially pediatric doctors, who seem to miss the symptoms.” ~Michelle Jones
“I encourage anyone with a heart to pick up a copy and help us end Duchenne. Caution, you will need a box of tissues” ~Rita FeilingWhen asked what was the main thing all the co-authors learned by submitting stories to the SOS book. “I believe together, our strong faith is making a difference in a treatment/cure being found.” “That i don’t have to be silent.” |
| SOS SIGNAL TO THE WORLD! | Paper Back21.95 |
