Shining Light On Duchenne Muscular Dystrophy
By Misty on Apr 7, 2010 in In Your Face Duchenne
Cure Duchenne Endorses Book “In Your Face” Duchenne Muscular Dystrophy All Pain All GLORY…
Here is what they had to say…
“As the mother of a son born with Duchenne muscular dystrophy (DMD), Misty is doing what any mother would do – fighting for the life of her child. Misty is the author of “In Your Face: Duchenne Muscular Dystrophy…All Pain…All Glory.” Read More
What an honor to have one of the Top not-for-profit Duchenne Research organizations support not only the book but what the book stands for. Each and every person that is touched by duchenne has a responsibility to take a stand in what ever way they can to create an unstoppable duchenne movement, either by wearing a t-shirt and adding Duchenne to each of there facebook and twitter profiles or going as extreme as starting your own pharmacuticle company. Its not about how much you do it is about just doing what you can with what you have. We all have something to contribute. In navigating the Duchenne journey over the last 14 years I have learned the squeaky wheel gets the grease. I wonder if there were million+ squeaky wheels if we could finally be heard and end duchenne once and for all!
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YES…thank you!!
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Hey there, I have a stupid question. How could I contact you about this article? I can’t find your email address and I want to speak with you about it, thanks…
Send me an email to mistyvanderweele@gmail.com with your phone number what time zone you are and the best time to call and I’ll get back to you…