Thriving…not just surviving!

I literally went from fetal position to finding my voice to assist in the mission to conquer Duchenne Muscular Dystrophy I call the DUCHENNE MOVEMENT!

Hi There! My name is Misty. Very nice to meet you!

I am writing this in first person because I want you to hear about me from me. I want you to know I have fears, hopes and dreams just like you.

The biggest dream I have…

A cure for Duchenne in my sons lifetime. Actually this dream is why I am writing books and assisting others who are touched by the most common paralyzing life-threatening muscular dystrophy amongst boys called Duchenne.

Being told your child won’t live to be an adult is devastating.  I literally spent a week laying in bed wishing I would wake up from “this” nightmare! Praying and pleading like I had never done before until I was asked a life changing question I write about in the book “In Your Face” Duchenne Muscular Dystrophy All Pain All GLORY! A question I am sure if you are a duchenne parent you have even asked yourself.

WHY IS THIS HAPPENING ??

I realized my journey with my sons Duchenne was how I was going to help others. This realization has evolved over the last 15 years as the progression of Duchenne made its mark. And became crystal clear as I wrote In Your Face Duchenne Muscular Dystorphy All Pain … All GLORY!

I would bring my past successful network marketing skills and combined them with internet marketing and social media to assist other parents with the emotional roller coaster Duceheen causes. At the same time take Duchenne awareness to the next level.

I believe every parent dealing with Duchenne  is meant to be on this journey, even though it wasn’t wanted. That they are strong enough to handle the consuming depths of pain that Duchenne brings to not only survive…but THRIVE!

I know this because THRIVING is what I am doing right now! I am a “Alaska Girl” born and raised where I still resides on a Commercial Vegetable Farm with husband Glen, daughter, Jenna and my son Luke, who’s journey with DMD has enriched my life beyond measure. All of which has deepened my fascination for the outdoors, family and the human connection.

Now I am a Speaker, Author and Duchenne Advocate, with 15 years of speaking experience, my story with son’s Duchenne has been featured in the Alaska Parenting Magazine (no longer in publication), local newspaper the Frontiersman and the online MDA Quest Magazine. With appearances at the Alaska Women Show, The Alaska Chapter Muscular Dystrophy Association and Channel 2 News (Alaska NBC Television Station).

Here is some good ole Alaska Fun for you!