http://www.mistyvanderweele.com/duchenne-wishes/ Thrive not just survive in the face of Duchenne muscular dystrophy Fri, 18 May 2012 16:40:03 +0000 hourly 1 http://www.mistyvanderweele.com/duchenne-wishes/comment-page-1/#comment-626 Misty Fri, 24 Sep 2010 02:24:02 +0000 http://www.mistyvanderweele.com/?p=223#comment-626 Bless you MOM!! My ♥ goes out to you...thank you for sharing. HUGGSSS !! Bless you MOM!! My ♥ goes out to you…thank you for sharing. HUGGSSS !!

]]> http://www.mistyvanderweele.com/duchenne-wishes/comment-page-1/#comment-617 Christina Wed, 22 Sep 2010 14:49:32 +0000 http://www.mistyvanderweele.com/?p=223#comment-617 MY SON KE'Veon born with it and he only live 6month .then i had a son that didn't have it and my last son Jerrold born with it an live only one month my world MY SON KE’Veon born with it and he only live 6month .then i had a son that didn’t have it and my last son Jerrold born with it an live only one month my world

]]> http://www.mistyvanderweele.com/duchenne-wishes/comment-page-1/#comment-66 Misty Wed, 30 Jun 2010 16:24:49 +0000 http://www.mistyvanderweele.com/?p=223#comment-66 Pamela, I hear the love in your words, bless you, live beyond their sons I am not sure what you mean, do you mean a life other than the one a mother has with her Duchenne son? Yes, I have a marriage, a daughter a thriving business. Is it easy heck no, but show me a life that isn't touched by struggle at one time or another. :-) Pamela, I hear the love in your words, bless you, live beyond their sons I am not sure what you mean, do you mean a life
other than the one a mother has with her Duchenne son? Yes, I have a marriage, a daughter a thriving business. Is it easy heck no, but show me a life that isn’t touched by struggle at one time or another.

]]> http://www.mistyvanderweele.com/duchenne-wishes/comment-page-1/#comment-65 pamela Willmer Tue, 29 Jun 2010 12:09:12 +0000 http://www.mistyvanderweele.com/?p=223#comment-65 I am a parent of two children who have muscular dystrophy. My son Jason died of the age of 28 four years ago and my son Chris who just turned 34 struggles to get through the day everyday. I could write my own book. When you are young parents you can fight the "good" fight. While they are still with us and the disease process is ongoing the fight gets harder and harder. We would do anything to keep them going. The world is turned upside down when you loose that precious son. There is no closer mother son relationship than that of this one. I had that with my two sons. I see you have it with your son. I would like to know a mom that has tried to live beyond their sons. It isn't easy. Has anybody out there experienced that? I look forward to reading your book. My sister Christine O'Hagan wrote a book called Book of Kehls describing her experience with MD. I am a parent of two children who have muscular dystrophy. My son Jason died of the age of 28 four years ago and my son Chris who just turned 34 struggles to get through the day everyday. I could write my own book.
When you are young parents you can fight the “good” fight. While they are still with us and the disease process is ongoing the fight gets harder and harder. We would do anything to keep them going. The world is turned upside down when you loose that precious son. There is no closer mother son relationship than that of this one. I had that with my two sons.
I see you have it with your son. I would like to know a mom that has tried to live beyond their sons. It isn’t easy. Has anybody out there experienced that? I look forward to reading your book. My sister Christine O’Hagan wrote a book called Book of Kehls describing her experience with MD.

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