Comments on: 55 Days of One Step At a Time with STS Treatment…

By: 125 Days of VECTTOR Treatment Success For Duchenne Muscular Dystorphy | Misty VanderWeele

Wed, 20 Oct 2010 18:19:57 +0000

[...] Here is the link to Luke’s August PT videos….HERE… [...]

By: Misty

Misty — Mon, 18 Oct 2010 05:02:48 +0000

Sarah, it is safe, there is no pain involved, at this moment I believe almost 40 boys are receiving the treatment and only a couple not reporting anything happening…but by the nature of the treatment I think we are just missing something with them…Yes Luke is doing well..tomorrow I will be shooting more video of Luke at PT to compare videos

By: Sarah Knowles

Sarah Knowles — Thu, 14 Oct 2010 08:45:06 +0000

Hi Misty
I firstly want to say WOW! and Amazing!
Luke does seem to be doing incredibly well,
This STS treatment, is there an age limit for lads who can be treated? is there always success? and are there any bad side effects or risks involved? I guess what I’m asking is…is the STS treatment safe?
I’m amazed and inspired at Lukes progress and some others I have seen, read about.
Could this be a cure? I really hope so.
Send my best wishes and words of encouragement “Go Luke!” Lots of Love Sarah XXX

By: Misty

Misty — Mon, 16 Aug 2010 02:35:44 +0000

The treatment isn’t putting dystrophin back into his body Kathy, the body is the only thing that can make dystrophin…it is putting the circulation back into his body, dystrophin plays a very large role in the circulation at the cellular level and since DMD is caused by the lack of dystophin the body isn’t getting the right circulation…sorry I didn’t explain myself correctly to give you the wrong impression. Luke is doing very well and he is also not the only DMD young man or child receiving this treatment…Blessing Kathy…♥Misty

By: Kathy Gordon

Kathy Gordon — Sun, 15 Aug 2010 10:35:44 +0000

As a parent of a son wit DMD I am very concern about this and I’m sure this letter won’t be published with the rest of the comments. While I can clearly see how this child’s tendons are loosen, I don’t see how you are putting dystrophin back into his body. You are using up the preious little he has.

By: Misty

Misty — Mon, 09 Aug 2010 19:26:52 +0000

That is GREAT news David…Thanks for sharing…I will make sure Luke gets your message…♥Misty

By: David Gould

David Gould — Sat, 07 Aug 2010 07:14:21 +0000

All I can say is WOW!!! What an inspiration..Both myself at age 43 and in a wheelchair for the past 10 years and my nephew who is 21 will be going for the treatment on August 24… My nephew has been researching and following your posts as he has forwards everything on to me… Thank God for great Opportunities such as this..Luke you are an inspiration my friend..
David G.

By: Misty

Misty — Thu, 05 Aug 2010 01:14:31 +0000

Hey Dr. B !! How are you, Yes Luke is going fantastic, working really hard, super dedicated! Yes he is gaining more muscle, PT says all muscle groups are engaging!! WHOOO, WHOOO !! I will let Luke know of your encouragement. ♥Misty

By: Daniel Boudreau

Daniel Boudreau — Thu, 05 Aug 2010 00:55:29 +0000

Luke,
I am so proud of you. You are really trying hard and I want to encourage you to keep it up. I remember when you could not shake my hand because you could not get your arm off the arm rests.
Looks like you are gaining a little weight?
Great progress
Daniel

By: Misty

Misty — Wed, 04 Aug 2010 16:14:07 +0000

Patty!! WOW, you check everyday?? How very special!

By: Misty

Misty — Wed, 04 Aug 2010 16:10:11 +0000

Yes it is Claire! ♥

By: brenda burk

brenda burk — Wed, 04 Aug 2010 12:13:59 +0000

Incredible Luke watching u gives us all so much encouragement xo

By: claire holloway

claire holloway — Wed, 04 Aug 2010 11:47:12 +0000

Thats so great to see,so pleased for you Luke and Misty xx

By: Patricia

Patricia — Wed, 04 Aug 2010 04:55:24 +0000

Luke, I check every day for updates. You ROCK!

By: Misty

Misty — Wed, 04 Aug 2010 03:42:55 +0000

I told Luke what you wrote, he smiled ♥