55 Days of One Step At a Time with STS Treatment…
By Misty on Aug 4, 2010 in STS Treatment
I have this vision of a man hiking up a mountain almost all the way to the top falling down trying to get up when the man in front of him reaches down to help his buddy up. This is the way I see the STS Vecttor Treatments my son is undergoing. When he started the treatments 55 days ago he couldn’t turn his head much, he couldn’t reach, pinch, move his leg muscles, hug or even sleep without his bi-pap.
(Picture AT Left, June,19 Picture on Right July 30th)
At 3 weeks Luke had over all 30-40%, now he is building muscle, putting legos together, which means he can pinch. Now he is even engaging ALL his muscle groups.
I have heard this is snake oil, my response, if it is I want 10 truck loads delivered right to my front door!
Below are a videos of Luke receiving Physical Therapy on Monday August 2, 2010. You can so tell Luke is trying to move every muscle his therapist asks. She is re-training Luke to know how to use his muscles, so his brain can remember what it was like to lift his arm and move his legs. It is such a blessing to witness and share.
Enjoy the videos. There are 4 Parts…
I watched all 4 videos of Luke, and I just have to say WOW, there are no words to say that I can express my joy more than WOW! Keep up the good work Luke! We’re rooting for you!
I told Luke what you wrote, he smiled ♥
Luke, I check every day for updates. You ROCK!
Thats so great to see,so pleased for you Luke and Misty xx
Incredible Luke watching u gives us all so much encouragement xo
Yes it is Claire! ♥
Patty!! WOW, you check everyday?? How very special!
Luke,
I am so proud of you. You are really trying hard and I want to encourage you to keep it up. I remember when you could not shake my hand because you could not get your arm off the arm rests.
Looks like you are gaining a little weight?
Great progress
Daniel
Hey Dr. B !! How are you, Yes Luke is going fantastic, working really hard, super dedicated! Yes he is gaining more muscle, PT says all muscle groups are engaging!! WHOOO, WHOOO !! I will let Luke know of your encouragement. ♥Misty
All I can say is WOW!!! What an inspiration..Both myself at age 43 and in a wheelchair for the past 10 years and my nephew who is 21 will be going for the treatment on August 24… My nephew has been researching and following your posts as he has forwards everything on to me… Thank God for great Opportunities such as this..Luke you are an inspiration my friend..
David G.
That is GREAT news David…Thanks for sharing…I will make sure Luke gets your message…♥Misty
As a parent of a son wit DMD I am very concern about this and I’m sure this letter won’t be published with the rest of the comments. While I can clearly see how this child’s tendons are loosen, I don’t see how you are putting dystrophin back into his body. You are using up the preious little he has.
The treatment isn’t putting dystrophin back into his body Kathy, the body is the only thing that can make dystrophin…it is putting the circulation back into his body, dystrophin plays a very large role in the circulation at the cellular level and since DMD is caused by the lack of dystophin the body isn’t getting the right circulation…sorry I didn’t explain myself correctly to give you the wrong impression. Luke is doing very well and he is also not the only DMD young man or child receiving this treatment…Blessing Kathy…♥Misty
Hi Misty
I firstly want to say WOW! and Amazing!
Luke does seem to be doing incredibly well,
This STS treatment, is there an age limit for lads who can be treated? is there always success? and are there any bad side effects or risks involved? I guess what I’m asking is…is the STS treatment safe?
I’m amazed and inspired at Lukes progress and some others I have seen, read about.
Could this be a cure? I really hope so.
Send my best wishes and words of encouragement “Go Luke!” Lots of Love Sarah XXX
Sarah, it is safe, there is no pain involved, at this moment I believe almost 40 boys are receiving the treatment and only a couple not reporting anything happening…but by the nature of the treatment I think we are just missing something with them…Yes Luke is doing well..tomorrow I will be shooting more video of Luke at PT to compare videos
[...] Here is the link to Luke’s August PT videos….HERE… [...]