• 1st IN YOUR FACE BOOK SIGNING

    I am pleased to announce the signing launch celebration will be at one of my favorite coffee “hot spots” Vagabond Blues, down town Palmer on Friday July 30th 5-7PM

  • You Mean My Brother Could Hug Me Back?

    When I first saw Dr. Rhodes video I was VERY skeptical and knew I had talk to the doctor.  I was shocked the Doc called me back himself. After my call with him I was ready to put my son a the first airplane out of Alaska. However Luke’s  goal was to first graduate from [...]

  • Duchenne, Wishes, More Time, Quality of Life

    We all wish for more time. More so for parents who face life threatening disease like Duchenne,

  • Thrive despite Duchenne Workshop

    My aim is to offer tips, advice and support based on my 14 years experience with my own child and family as we face Duchenne Muscular Dystrophy. I know first hand how hard life can be with the added pressure of facing death at the back door everyday.

Misty’s Blog

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What CureDuchenne Has To Say:

“I must admit it took me a few days to delve into your
book, sometimes going back in time is a bit painful. It is turning out to be inspiring Misty instead of sad.”  ~Debra Miller

“As the mother of a son born with Duchenne muscular dystrophy (DMD), Misty is doing what any mother would do – fighting for the life of her child. Misty is the author of “In Your Face: Duchenne Muscular Dystrophy…All Pain…All Glory.”  Read More


  • Workshop »

  • Thrive despite Duchenne Workshop

    Thrive despite Duchenne Workshop

    My aim is to offer tips, advice and support based on my 14 years experience with my own child and family as we face Duchenne Muscular Dystrophy. I know first hand how hard life can be with the added pressure of facing death at the back door everyday.

    Apr 10, 2010 | 9 comments | View Post