Prime Duchenne Advocacy Real-Estate: Facebook Timeline

Prime Duchenne Advocacy Real-Estate: Facebook Timeline

Facebook Timeline, The new PRIME Duchenne Advocacy Real-Estate:

I know many still haven’t converted to the new facebook timeline theme. No one seems to like change. However I am pretty sure facebook in the near future will switch everyone to the timeline platform of having a large “Cover” or header pic at the top with your daily post history below.

I personally love timeline for two major reasons when it come to Duchenne Muscular Dystrophy Advocacy.

1. Everyone and their neighbors are on facebook everyday. So why not share our urgent message of global recognition for Duchenne in your timeline.

2. Any advocacy such as posting pics, Duchenne banners, status update etc. that you post will be featured in your status history below your profile picture.  This means Duchenne will stay in the facebook home feed longer. Which =’s more publicity for Duchenne.

Here is a screen capture video I shot about the new facebook timeline. I featured several Duchenne parents who have switched. Let me know what you think.

Switch to the new facebook timeline here:

http://facebook.com/about/timeline

Cover “header” graphics:

Ideal size 850px x 315px. If you aren’t techy no worries any Duchenne photo can be used. Play around with it to see what you like best.

FREE Online tool to edit photos:

http://picnic.com

Jan 11, 2012 | 0 comments | View Post

Best of 2011: Misty VanderWeele.com

Reflecting on the last year of the Duchenne Movement here at mv.com has filled me with both pride and a greater sense of urgency to keep on keeping on bringing the Duchenne message to the WORLD !

Without all the Duchenne Community what I do couldn’t be done. The accomplishments list below wouldn’t be possible.

–Duchenne Collaboration Books and affiliate writer program, Duchenne Advocacy and Support Videos, Duchenne Advocacy Projects and more.

THANK YOU ALL!♥

 

2011 Top Highlights at Misty VanderWeele.com:

 

2 Top Videos

2 Top Blog Posts

Picture This

Misty Does: Dealing For Duchenne in L.A.

Top 2011 Duchenne Advocacy at MV.com

Book: Saving Our Sons One Story At A Time

Duchenne Advocacy E-course

365 Days of Duchenne Desk Top Calendar

 

TOP 2011 DUCEHNNE SUPPORT STRATEGY

 In Your Face Duchenne Muscular Dystrophy All Pain All GLORY!

Updated and Revised.

Really has been a productive year! AGAIN THANK YOU EVERYONE FOR MAKING IT ALL POSSIBLE..

It’s all about working together to share our Duchenne Story with the WORLD !!

TOP NEW PROJECT TO COME IN THE NEW YEAR!!

2nd Collaboration Book of Duchenne Stories.

-Duchenne Children and Adults

(ages 6months old to 42 years old)

I will continue to bring to the Duchenne Community videos, Thrive emagazine and one more collaboration book. -Plus lots of ideas brewing in my brain to take our Duchenne story to the world in even BIGGER ways! :-)

Happy New Year!

Stay tuned for all the new Duchenne Advocacy to come in 2012!

Don’t forget – if you have any Duchenne Wishes for the New Year….

Leave Comment Below

Your friend and Duchenne advocate,

Jan 01, 2012 | 4 comments | View Post

Does Duchenne advocacy overwhelm you?

I am finding a couple common misconceptions many parents have about advocating for Duchenne.

 
Wonderful! You’re Back. Leave a comment on the blog and make sure you join my FREE Video blog newsletter so we can stay in touch and I can learn more about you and your thoughts.

1. Parents are feeling overwhelmed to take on any more work then they already doing.

AND:

2. Have deep fear that Duchenne advocacy will take them away from their Duchenne child. That somehow they can’t do both. 

 

 

 

In this weeks video blog I explore the advocacy topic as a whole as I answer my friend Jennette’s question about feeling overwhelmed around advocacy and not having enough emotional energy to advocate.

Let me know what you think by posting a comment below.

Dec 15, 2011 | 0 comments | View Post
Listen to the FREE teleseminar, no opt in required.

Listen to the FREE teleseminar, no opt in required.

The Duchenne advocacy in action teleseminar went off with a bit of a hitch but turned out very well over all.

I share 2012 and beyond advocacy plans, future advocacy products and how we as Duchenne parents can work together in the fight against Duchenne Muscular Dystrophy. 

As an early Christmas gift here is the direct link to the teleseminar. Would love to know your thoughts about the new E-magazine, new advocacy products and the All New Duchenne Advocate Team program.

 

http://instantteleseminar.com/?eventid=23516040

( NEW ANNOUNCEMENT THE DUCHENNE ADVOCATE TEAM PROGRAM IS FREE)

 

Here is what my good friend Ricky Tsang had to say.

 

 

 

 

 

 

Again would love to hear what your thoughts and advocacy plans are for this next year?

Dec 02, 2011 | 0 comments | View Post

HAPPY THANKSGIVING !!

Gobble, Gobble….I give many, many thanks to all my supports, followers, Duchenne Parents and the pioneers doing trials and treatments.

… I couldn’t do what I do with out all of YOU!♥

I give thanks for the real HOPE the Duchenne Movement has!

Happy thanks Giving Comments

Nov 24, 2011 | 0 comments | View Post

Does it ever get any easier?

 
Wonderful! You’re Back. Leave a comment on the blog and make sure you join my FREE Video blog newsletter so we can stay in touch and I can learn more about you and your thoughts.

 

This week I’ve had several people message me and I have seen it all around in the Facebook News feed.

All our emotions are all over the place due to recent loss of life within the Duchenne community.

We are all wondering does the roller coaster of Duchenne ever get an easier? I wish I could say it does get easier, but how can I when the pain can be too much for me as well?

All I can do is share what I do when I am feeling low.
In this weeks video blog I answer the looming question.

Does it ever get any easier?

Nov 16, 2011 | 4 comments | View Post

How to help your Duchenne Child to be Independent.

One of the huge concerns many Duchenne parents face is how can their child be independent when they physically can’t. And my friend Tammy is no different.

This is a complex subject but one I am very excited to answer. Many Duchenne children are living well into their 20′s and some in their 30′s. In order for these boys and girls with DMD to have as much independence as possible as they grow up their parents must teach them. Which can be hard when they are young because often times the parents don’t even know. They are plagued with serious questions. Will my child even be around by then? Will I even be around. What if (_______________) fill in the blank.

But today with everyone on Facebook, YouTube, twitter and other social media sites we can all share our knowledge of what is working and what isn’t.

That is why when Tammy, asked this question in the video below I first answered..with my own question.

-What will my child with disabilities NEED for them to live on their own?

If you have anything to add about how a Duchenne child can be independent please leave me a comment.

Of course, if you liked this video, share it with your Duchenne friends. Thanks for watching!

Nov 09, 2011 | 0 comments | View Post

Duchenne Advocacy is GROWING like never before!

The Duchenne Movement is building momentum. More and more Duchenne parents and loved ones are advocating like never before. What a sight to witness and an honor to be apart of.

I have a wonderful tool that helps me watch right from my email inbox the happenings going on within the Duchenne Nation around the world. It’s called Google Alerts. From there I find it extremely easy to stay connected and share Duchenne content.

I believe knowledge is power!

Here is a video I shot back in May 2011 on how to use Google Alerts…In♥Joy.

Nov 03, 2011 | 0 comments | View Post

CureDuchenne and $150K Duchenne Media Package

From now until Sunday you can vote for CureDuchenne in the Team Escalade Texas contest.

Duchenne awareness is key. The winner of this contest gets a 150k media package to promote it’s cause. We MUST to be the winner!

Contest ends Sunday at midnight and you can vote once in every participating city every 24 hours.

This video show you how to vote….

Here are the links to vote…It only takes a minute!

https://www.facebook.com/MetroplexCadillacDealers?sk=app_274534522571882
https://www.facebook.com/HoustonAreaCadillacDealers?sk=app_278723052155495
https://www.facebook.com/AustinCadillac?sk=app_171873706225535
https://www.facebook.com/sanantoniocadillacdealers?sk=app_100748246701254

Oct 26, 2011 | 0 comments | View Post

Picture this

Mini Inspirational Duchenne Poster for every day of the year on the desk tops of everyone you know? Wouldn’t that be just AWESOME?

“Imagine… Duchenne-Advocacy That Doesn’t take a ton of time, energy or breaks the bank. -Advocacy that creates teamwork, community and inspiration to turn your down-on-your-knees hope of a cure into ACTION. And the best part, you are already doing it!”

As Duchenne-parents we all have treasured photos or our Duchenne children, on the walls of our homes, proudly on the fridge, in photo albums, boxes, plastered on facebook and in our wallets. This is the story of Duchenne we live everyday and it is time for the world to see our story in living color and what better way then on a calendar for all to see? You know, pictures have a way that can stop a person in their tracks to just look and be touched by what they see. They evoke emotion and make a lasting impression not easily forgotten. Now lets combined your picture with Duchenne facts to double the impact. Research shows that we remember facts easier when combined with photographs. See for yourself. Registration is required to participate. If registration price isn’t within your budget please notify me. We are on a time crunch to have the desktop calenders done in time for the new year. Deadline is Oct. 31st…HURRY!

For Registration===>http://www.mistyvanderweele.com/365-days-of-duchenne/

Can’t wait to see your Duchenne Photos!

 

For Registration===>http://www.mistyvanderweele.com/365-days-of-duchenne/

Oct 20, 2011 | 31 comments | View Post

Fight Like a Girl and Duchenne Muscular Dystrophy

October is national Breast Cancer Awareness Month and like so many other women I have had breast cancer close to me in some way. So this got me thinking we need an awareness month for Duchenne.

Anyway the title of this blog should actually be. -You don’t have to be a professional to advocate for Duchenne Muscular Dystrophy.

This last week I have talked to several Duchenne Parents and individuals who said to me, I am not a writer, it takes too much time to advocate, I don’t have enough money to advocate or my emotions take over then I feel I am a useless advocate. For me this all translate to I feel inadequate in some way to advocate. Meaning parents don’t feel confident enough to advocate so it is easier to come up with excuses why not to do it.

But I say advocacy can be as simple as wearing an awareness bracelet. What is “professional” about that? Or as this video says….

Join forces with a non-profit of you choice, create your own or participate in one of my advocacy project.

I didn’t start out as being a professional advocate or author, I mean look at the first printing of In Your Face, it was full of grammar, punctuation and printer errors…But I didn’t let that stop me from publishing. I wanted others to see if I can do it so can they.  My back ground is a farm laborer and internet marketing on the side trying to figure out the online world of earning income. I did dabbled is public speaking and never turned down a TV interview, but I was no wear near a professional. Then my son got sick and it all changed.

Please know you can advocate too :)

===>If you are interested in ordering your own green Duchenne Awareness bracelets you might like to check them out here

===>Only 4 story spots left in Saving Our Sons & Daughters II

===>365 Days of Duchenne 2012 Photo deadline October 31st..2 free spots available

Oct 13, 2011 | 2 comments | View Post

How to manage emotions and sadness after advocating for Duchenne

This quote has been going around facebook “You never know how strong you are, until being strong is the only choice you have. ~UNKNOWN

However in the beginning after the diagnosis you are faced with pictures in your mind of the future and you have no idea if you are strong enough to handle any of it. Only when you pass through the stages of progression you realize you have made it somehow. That is when this quote becomes true for you.

You know the thought of losing our children is so damn scary. Its a reality none of us should have to face. But in Duchenne we see it happen before our eyes everyday. But we must learn to cope and live life anyway. We also know we must learn how to advocate in any way that we can but the constant battle with emotion tries to take us out of the game.

Living with Duchenne of our children we are in a constant battle of our emotions. So when sadness sends us into an emotional tail spin we feel inadequate in some way. That somehow our emotions are wrong, that we are weak.

Here is some things to know to be able to  move through the sadness onto good days. The first thing is -IT IS OKAY TO TAKE A BREAK !

View the this video to explore this topic further.

In the video I forgot to mention to add. Congratulations Cindy for advocating for Duchenne despite the sadness that ultimately follows. Advocating takes great COURAGE! Remember to

  • take time out when you need it
  • call a friend for encouragement
  • go for a drive or a walk
  • KEEP ADVOCATING ANYWAY

Also, Cindy thank you for joining in these two advocacy projects below.

You know you don’t have to do any of it alone. I am here for you and any Duchenne parent wanting to do more. We need an army!

**Saving Our Sons & Daughters 2 (ONLY 8 Story Spots Left) more info here.

**365 Days of Duchenne 2012 Desk Top Calendar. ( HURRY! 2012 is almost here still need 356 treasured Duchenne photos) more info here.

Oct 05, 2011 | 2 comments | View Post

Saving Our Sons One Story At A Time [Book Tour]

The Duchenne Movement is gaining momentum daily as Duchenne parents around the world start to wake up to the fact that we all need to be doing some sort of advocacy. To me it doesn’t matter what advocacy method you use as long as you are using at least one way. It might be running marathon, Chinese lantern launches or submitting your story to be published in a book on Amazon. Like Saving Our Sons One Story At a Time.

Come take a tour within the pages with me on this beautiful Alaska fall day. My mountain doesn’t show up in the video because the lens was in direct sunlight :( but the day was glorious and I wanted to share a bit of it.

If running isn’t your cup of tea or you don’t know where to begin to plan a Chinese lantern launch here are two different ways to advocate for Duchenne Muscular Dystrophy I am offering right now.

Partake in the next book Saving Our Sons & Daughters 2 ===>Here

Join in the complementary 365 Days of Duchenne Advocacy Project tellasemiar===>Here

You can order your very own copy of Saving Our Sons ===>Here

Sep 28, 2011 | 0 comments | View Post

Duchenne Muscular Dystrophy (What Am I Doing Wrong?)

If you have started or have been advocating for Duchenne Muscular Dystrophy, GOOD FOR YOU!  If you want to and you haven’t, you are in the right spot.

My fellow Duchenne mom and friend Kate from Facebook needed some advice about whether she is was doing something wrong in her Duchenne advocacy efforts since she feels she isn’t getting the response she wanted on facebook.

I’ve been in this exact spot posting on facebook, a bit on twitter, even with videos “seemingly” not getting noticed. I say seemingly because advocacy builds upon itself.  I takes the average person 4-7 times of seeing something to remember it.  Now in saying this hop down and click play on the video.

You’ll learn 3 crucial tips when it comes to advocating on facebook.

  1. You must learn to balance your Duchenne advocacy messages on facebook with other “life” things that lights your fire, inspires you or even what you had for dinner.
  2. To keep the advocacy momentum going you need to be actively befriending new people and getting your message in front of them.
  3. Get outside of facebook by creating your own blog and or website.

Advocating Resources:

Free blog platform resource is blogger.com If you can send email and post on facebook you can create a blog.

Want something more professional, my wordpress team at gfydmember.com can teach you everything you need to know plus have 24/7 access to the training which for me is invaluable.

Sep 20, 2011 | 0 comments | View Post

Duchenne Muscular Dystrophy ADVOCACY -Inadequacy

With Duchenne-parents out climbing mountain, writing books, selling awareness bracelets, fund-raising and starting non-profits it is easy to feel inadequate to advocate for Duchenne. But I assure you advocacy does not have to be something LARGE. Can be the very simple act of posting on facebook or updating your twitter status.

Be sure to check out the How to Advocate like a Pro video series in the side bar of this website ==>

And don’t forget what better way to advocate for Duchenne than submitting a story about how Duchenne touches your life. What is cool about submitting a story is. You do the work once and it keeps on giving and giving and spreading awareness even while you sleep. For information go HERE.

Have a video you’d like to see from me. Let me know in comment box below. Oh, and please like this blog post and be sure to share it on facebook and twitter.

Sep 13, 2011 | 0 comments | View Post
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