1st IN YOUR FACE BOOK SIGNING
I am pleased to announce the signing launch celebration will be at one of my favorite coffee “hot spots” Vagabond Blues, down town Palmer on Friday July 30th 5-7PM
For anyone touched by Duchenne Muscular Dystrophy
I am pleased to announce the signing launch celebration will be at one of my favorite coffee “hot spots” Vagabond Blues, down town Palmer on Friday July 30th 5-7PM
When I first saw Dr. Rhodes video I was VERY skeptical and knew I had talk to the doctor. I was shocked the Doc called me back himself. After my call with him I was ready to put my son a the first airplane out of Alaska. However Luke’s goal was to first graduate from [...]
We all wish for more time. More so for parents who face life threatening disease like Duchenne,
My aim is to offer tips, advice and support based on my 14 years experience with my own child and family as we face Duchenne Muscular Dystrophy. I know first hand how hard life can be with the added pressure of facing death at the back door everyday.
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“I must admit it took me a few days to delve into your
book, sometimes going back in time is a bit painful. It is turning out to be inspiring Misty instead of sad.” ~Debra Miller
I am pleased to announce the signing launch celebration will be at one of my favorite coffee “hot spots” Vagabond Blues, down town Palmer on Friday July 30th 5-7PM
My aim is to offer tips, advice and support based on my 14 years experience with my own child and family as we face Duchenne Muscular Dystrophy. I know first hand how hard life can be with the added pressure of facing death at the back door everyday.
Apr 10, 2010 | 9 comments | View Post
We all wish for more time. More so for parents who face life threatening disease like Duchenne,
Apr 11, 2010 | 2 comments | View Post
I have this vision of a man hiking up a mountain almost all the way to the top falling down trying to get up when the man in front of him reaches down to help his buddy up. This is the way I see the STS Vecttor Treatments my son is undergoing. When he started [...]
Aug 04, 2010 | 15 comments | View Post
Especially in honor of Mother’s Day and in appreciation for everyone who has purchased copies of “In Your Face” Duchenne Muscular Dystrophy All Pain…All GLORY! I have a special offer just for you! Now through the end of May you can purchase your very own autographed copy for only $12.95.
May 06, 2010 | 3 comments | View Post
I am BLOWN AWAY by all the support that is coming in daily! Incredible time we are in!
May 03, 2010 | 5 comments | View Post
In navigating the Duchenne journey over the last 14 years I have learned the squeaky wheel gets the grease. I wonder if there were million+ squeaky wheels if we could finally be heard and end duchenne once and for all!
Apr 07, 2010 | 2 comments | View Post
Derek Turner is a prime example that living with Duchenne not only possible, but if you put your mind to it you can do anything. Click the Video Link below to see if Derek rolled away with a blue ribbon… http://bit.ly/8Yfs8k
Mar 23, 2010 | 5 comments | View Post
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