“I don’t set out to offend or shock, but I also don’t do anything to avoid it.”~Sarah Silverman
“It’s discouraging to think how many people are shocked by honesty and how few by deceit.” ~Noel Coward
“SHOCKEM” ~Misty VanderWeele
(Sometimes a Blog, sometimes a Vlog)
Hi there, Misty here. This week has been a full busy one. I finally was able to publish and launch the new Duchenne sibling book; Don’t Forget the Siblings, growing up on the sidelines of Duchenne Muscular Dystrophy. You can check out but just you might want to check out this weeks video for ThriveThursday.
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Is there anything that is troubling you about coping with Duchenne related issues? Or maybe you have a suggestion you’d like to share with others. Pop Misty an email at Misty@MistyVanderWeel.com. You can be sure Misty will answer any question to the best of her abilities or send you in the right direction. MistyVanderWeele@gmail.com —————————————————————————————————————–
Misty presents 4-Duchenne Books for all out global awareness. In Your Face Duchenne Muscular Dystrophy All Pain All Glory; her son, Luke’s first 18 years on the Duchenne journey, and Don’t Forget the Sibings, Saving Our Sons and Daughters II, and Saving Our Sons, are compilation books of 98 different courageous Duchenne stories from around the world geared to educate, inspire and spread the word that Duchenne must end. Click here for more details.
Thrive Community is where you’ll find more support, advocacy tools and connection. Plus access to ALL previous THRIVE publications to keep Thriving On! Click Here For More Information ————————————————————————————–
What is the Duchenne movement? I pulled this definition off of dictionary.com they had something like 17 different definitions but my favorite one is this. “A diffusely organized or heterogeneous group of people or organizations tending toward or favoring a generalized common goal.” Our goal being a cure for Duchenne; while living and giving the best possible life to our Duchenne children and families.————————————————————————————
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